Post by electricguy on May 26, 2018 20:38:39 GMT -8
My spasticity is controlled by a fentanyl patch every 72 hours. There have been times when they did not have it at the facility and I had to go to the ER to get it. While waiting to get a new patch, the spasms and pain would be so bad, I considered asking to be shot to put me out of my misery.
I get issues of autonomic dysreflexia, from my catheter being plugged or kinked. Which is about the same is not being catheterized when needed. My bladder overfills to the point of leaking out of the stoma, my blood pressure raises and my ears ring.
I do agree wholeheartedly that most AB people have absolutely no idea or can even fathom our misery.
electricguy, that is a bleak picture you paint. Yes, I had been there, thoughts of a loaded pistol held at my head, my brains splattered all over the wall. Fentanyl is a powerful opioid. I guess your spasms would come back with a vengeance when the fentanyl drains from your cells. I was like that with morphine. When I was due to take my next dose, the spasms would be horrendous. In your case, you may well benefit from a baclofen pump
...and these deprivations and errors happen in facilities that advertise as being “world class” leaders in their field. There is a macabre element juxtaposed over the know-it-all medical “efficiency”. All the while, we are being judged on how “compliant” our conduct is.
Post by electricguy on May 28, 2018 3:52:02 GMT -8
vintage, that is very true. They also make statements in their shift reports that may or may not be true, or only half-truths. Without the patient's knowledge and no opportunity for the patient to explain their side of the issue. Unlike the staff, if the patient files a grievance, the staff can explain their interpretation of the events leading to the grievance.
We naturally acquiesce to those in authority. Hitler couldn’t have killed millions of Jews by himself. It took thousands of beguiled people to slavishly obey his commands. That’s what led to the cruel suffering and deaths of millions of people. It is assumed that people giving orders have a higher social status than people receiving orders. We are conditioned to accept authority. In a hospital situation, we rely on the expertise of doctors. Obedience occurs when we trust those whose knowledge of medicine is superior to ours. A good consultant will share ideas with patients. Through mutual dialogue they will arrive at a course of treatment. This is the way it should be done. You should not have to be slavishly obedient just because somebody has a greater knowledge than yourself. People obey orders to receive a reward or because they want to avoid negative consequences of disobeying. This can lead to abuse by people in authority. This is particularly evident in hospital. Patients don’t want to offend those in authority, fearing that it could impact negatively on their treatment. They become entrapped, compelled to obey even when they think they are being unjustly victimised. It is a psychological minefield.