I’m a paraplegic after an accident in July of 2017. I’m now home but pain gets worse for me. Baclofen is doing nothing for me and pain becomes unbearable as the day progresses. This is all new to me and I’m not dealing very well. Seeing my doctor today. Any additional meds that work for this pain? It’s to the point I can no longer do my excercising because of pain. I need pointers and advice please. Thank you
I take Kratom. It is legal and does not require a prescription. People who use marijuana or oxycodone are not usually impressed with Kratom, but I think it is wonderful. I had been on oxycodone while in the hospital, but it is very bad for you. So, when I learned about Kratom, that’s what I started using.
hi and welcome 2510, baclophen is bad and did nothing for me also, I heard baclophen is bad for nerve regeneration, especially what we need in our situations. I don't have bad pain, mostly minor and moderate pain, cannabis has helped me in dealing with pain. only drug I take currently.
I just got back from my general doctor appointment. He is referring me to a neurologist hopefully to get me on the right path. I am not doing well at all physically and mentally. I’m topped out in the Baclofen dosesge and doing Valium 3 times daily. Trying to find right anti depressant med as well. Ramping up the Paxil currently. Cymbalta and Effexor didn’t seem to help. Does the marijuana keep you spaced out all day? Pain management is one thing but I want to function as well. This is all brand new to me and I am not doing well at all. Depression is huge hurdle now. Please help me thru this everyone!
2510, I will send you a PM with the phone and name of the company where I order Kratom. 4 ounces of the Maneg Da strain will cost, with shipping, about $40, maybe $42. As Sam said, Baclofen does nerve damage. It also does brain damage. Doctors gave me Baclofen. I quit taking it when I realized what they were doing to me. I need my brain to defend myself!
I much prefer alternative therapy to medicinal drugs, though I realize that not everyone feels this way. I will suggest to you Valerian Root as an herb that relaxes you. Herbs will seldom give you the same potent “kick” that a drug will give, but in my experience, herbs don’t do the harm that drugs do. Plus, with herbs, YOU are in charge. They become your “friend”, available when and if you need them. You don’t have to finish a “round” of them. You can quit taking them once your problem is solved. You can share them with a friend, since they aren’t a prescription.
But doctors are almost never taught about herbs, so they can only advise against them,...as anything else would be malpractice.
I’m topped out in the Baclofen dosesge and doing Valium 3 times daily. Trying to find right anti depressant med as well. Ramping up the Paxil currently. Cymbalta and Effexor didn’t seem to help. Does the marijuana keep you spaced out all day? Pain management is one thing but I want to function as well. This is all brand new to me and I am not doing well at all. Depression is huge hurdle now. Please help me thru this everyone!
I took valium also in hospital but it becomes addictive, so they stopped it. marijuana helps in many ways: 1) reduces muscle spasms and reduces muscle tension 2) promotes sleep 3) takes the sting away from minor and moderate pain, takes mind off the focus of pain management. 4) helps in mental aspect of dealing with stresses of sci. 5) doesn't leave in foggy state as many prescript. drugs do, as long as u don't do high doses of marijuana.
If you don’t mind telling us, what is your level of injury, 2510? I’m paralyzed from mid-chest down, so what I think of as exercise and what you think of as exercise could be two very different things. And, along that same line, you said, “Pain management is one thing but I want to function as well.” I feel the same way, but depending on your level of injury, we might be thinking of two very different things in the realm of “functioning”. Are you able, for example, to drive a car? In that case...whoa!...not marijuana for pain. So, maybe clue us in a little more on your level of injury and in what activities you are able to participate.
2510- People respond to drugs differently. Sometimes we have to try a lot of different drugs, or dosages, before we find something that works. Around year 2 or 3 I was having such severe abdominal and thoracic cramps and pains I had trouble breathing. I stopped exercising because I just wanted to be in bed. Over time I found that exercise actually helped a great deal, but when I began systematic abdominal exercise it brought on the pain and difficulty. When I kept pushing (because it was too depressing to huddle in my misery) those breathing muscles and core muscles slowly started to behave themselves. It took 6-12 months before it was no more of a problem than other problems.
Depression?- It is a very logical reaction to your loss. We take time to move through the grief and sometimes get stuck in depression. Meds might help. As it happens, the majority of us respond well to baclofen, which is why it is so commonly prescribed for spasms. As a few people mentioned, It usually does very little for pain, though gabapentin helps some folks. My doc and I found at the beginning that, for me, baclofen and gabapentin work in synergy, not one doing one thing and the other something else. Each person's chemistry is different. Vintage gets on well with kratom.
I have searched for research validating the claim that baclofen impairs nerve recovery and can find none. The only mention I found was on a site that sells exercise equipment. The Doctor involved in Restorative Therapies said he had proof from animal studies. He did not reference anything, nor did I find any research in my own search of the internet. You might find something if you are willing to sift enough pages, but I do encourage you do do your own searches before you accept anything you read here. The internet is weighed down with claims of this and that, so it is wise o be skeptical and self-reliant.
That said, many of us will report from our own experience that baclofen impairs nerve function, which is quite different from nerve recovery. It tends to make muscles weaker, which is logical since the point is to interrupt spasms. In my own case general background muscle tension (involuntary) is so high (without meds) that I can barely move my muscles voluntarily. I use 30 mg of baclofen per day and that cuts the background tension enough that I can move around pretty well. That is me and each of us is different. A girlfriend of mine with MS cannot baclofen at all for spasms because she immediately gets so weak she falls down.
People who get benefit from marijuana products are more likely to post about it. It helped neither my pain nor my spasticity- that's just me. I am weird with alcohol as well- instead of making me relax it puts my body in a high state of tension. You can now get varieties of marijuana that do not affect mood at all, nor mess with your head. Oils are made from the plant, CBD oils, that work well for some folks, including topical use. I got a sample salve at the LA Ability Expo 2 weeks ago and it takes the edge off groin pain I suffer. I've been using it before I go to bed since. For me it helps just a little, so I don't know if i will be willing to spend $60 on a jar but, as I said- each of us is different.
Given your present difficulties with depression, if you try a CBD oil or other marijuana product be sure to use one that has NO psychotropic effects at all. I know you do not want to risk a bad reaction and there are plenty of no risk products out there.
tetra, - every time I read your pain and meds experiences I am reminded how similar to Peter your experiences are (not how you acquired your injury but how it affects you). I wonder if the level of your injury which is very similar to Peter's is the reason? Am I right in thinking that people with cervical injuries are more likely to experience spasticity? 2510,Peter's experience with baclofen is similar to tetra's - makes him weak but helps calm down the "background tension" that she describes. Dosage is always a balancing act. Enough to enable him to move around but not enough to make him weak (he very gradually cut down from 80mg to 40mg). He was told that the large amount of baclofen he was taking in the early days could have been detrimental rather than beneficial. The weakness it was causing actually exacerbated the spasticity. Also agree that it does little for pain - though with him bad spasticity and pain go hand in hand. He takes Lyrica (Pregablin) for nerve pain. I know many don't like it and some have bad side effects but for him it makes his life pain free enough for him to function. Might be worth mentioning that the spasticity is very variable and often improves over time. Peter's started to ease after about 2 years to be tight muscles rather than full blown, legs flying spasticity - though any over exertion (too much exercise) amongst other things can ramp it up again. He is over 5 years post and has learned to some extent to predict what will and won't help and he is still moving very slowly forward - each year brings more function than the last. Though sometimes it is unpredictable - Now for instance he is having a bad patch and we cannot fathom what it is. He is seeing a neurologist later today to see if he can help. We suspect adding a new drug (Tamulosin) for prostrate problems might be putting things out of kilter though his GP thinks not. Another spasticity puzzle to solve For Peter gentle stretching rather than exercise helped lots in the early days. You can find lots of videos on the internet but if you can get a Physio to show you how or do passive stretching for you it helps. "Proper" exercise was a real no-no to start with and he just ended up more tight. After around 2 years he was able to do more - but even now it's a real balancing act. Annoy his tight spasticity prone left hand side by too much/too vigorous movement and it behaves like a spoilt toddler having a tantrum. Another thing that helps him relax tight muscles is a hand held gentle electric massager. Not too vigorous. Heat pads (microwave) often help the pain too. I am so sorry to hear your experiences and hope your neurologist helps. Apologies if none of what I have written is new to you. Hopefully others will post about what helped them then you can try different things until you work out your own recipe.
I went to my gp doctor yesterday...referred me to a neurologist whom I see on Monday. Baclofen does little to help it seems. As the day progresses the med doesn’t even seem to phase me at all and I sit on the couch in misery waiting for bedtime. I have no more answers...new problems always seem to be cropping up.
this injury SCI, is very challenging, but attitude is what makes us happy or sad. your still new to this injury, and what is lost hurts, mourn.... there comes a day where u will most likely say, I'm still here and I better make the best of it. as days go by it will get easier, and I still go through days where I'm just pissed, part of mourning what's lost.
Nice sleuthing, Vintage. I take it as basically good news that negative information is thin after all these years of it being a major neurological drug. That tells me there have not been so many difficulties as with most of the others. Gosh- hard to imagine patients willing to take so much baclofen they qualify for the description "chronic intoxication". Yuck!
I have sometimes seen the claim that people's bodies "get used to" baclofen and they then need higher doses. I don't think this is "conventional wisdom", and I know it has not been my own experience.
I step in the water, but the water has moved on...