This isn't one of the commonly mentioned associated issues that occurs with Spinal Cord Injury but it is often an issue for many with SCI. Personally, this is an issue for me especially as I like to be active and busy but this comes at a cost and I am sure that I am not alone in this.
There is sometimes a temptation to 'keep up' with our friends, our family rather than holding anyone up or needing assistance. Over using muscles, joints and ligaments that have to do the work of those without function, all takes its toll. Dealing with less sleep than we should have due to spasticity and pain, dealing with pain at any time of the day is tiring.
Also negotiating non accessible places in a wheelchair can be greatly tiring.
So how can we manage our energy levels?
For a start, it helps to be as fit as we can be, eat healthy and exercise as much as possible.
Pace yourself, there is nothing to prove by overdoing things.
Drink enough water
Sleep as best you can and/or rest
Be sure to have the best pain management that you can possibly have.
This extract is taken from a study on this subject, the actual report is a worthy read:Source
Secondary sequelae of SCI were perceived to contribute to the experience of fatigue, especially spasticity (which contributed both to pain and problems sleeping) ‘Spasming in my left arm…creates stress on the shoulder, which creates pain’ (Kelowna, 15); ‘For me (fatigue results from) pain and spasms. I get leg spasms, and…when I am lying in bed my legs tense up’ (Vancouver, 476). Urinary tract infections (UTIs) were also identified as contributing to fatigue, as were low blood pressure, orthostatic hypotension, sleep apnoea, and pressure sores and their management. In addition, reduced respiratory capacity contributed to fatigue among those with higher lesions: ‘Just breathing and talking can exhaust you’ (Kelowna, 382).
Please share your thoughts and experiences on this issue....