Post by mb on Jan 11, 2018 3:44:20 GMT -8
Not sure how active this board is now but it's worth a try!
Over Christmas I suffered an injury and was diagnosed with CES by the A&E (on my second visit ) and operated on just over two weeks ago. The surgeon said my MRI did not show a huge disc herniation as he would have expected from my condition, and initially wasn't going to operate, however, after returning to the MRI with his team they believe I had a fragment in my nerve canal (? I think) at L3/L4 and a slight bulge in the disc compressing nerves. A few hours later I received a spinal decompression and discectomy to remove the fragment and shave the bulge.
Recovery has been frustrating not being able to stand up for a few days at all, but as things have settled down I regained some motor use of my legs although they get very painful when stood up and my balance is extremely poor. I started with a frame but have learned to manage with a stick for very short distances and have a wheelchair if I need to go out of the house. I had bladder retention prior to surgery and although I can now pass fluids I tend to only pass half, then have to wait and then push hard with my stomach muscles to get more out. I leak small amounts when coughing, laughing (rather rare just now!) or having to tense to move my midsection. I have major numbness in my back passage still and have no sensation of going to the toilet, but I manage to go daily even though it still feel like my bowels don't empty fully.
Anyway, enough of the gruesome details, I have a couple of questions for anyone who can shed some light. I have received no physio advice, occupation therapy or any kind of aftercare post surgery. I was simply discharged after three days and sent home, with an outpatient appointment to come after 6-8 weeks time.
I work full time and have been signed off but I am looking at my possibilities of getting back to my active and independent lifestyle again as soon as possible. Everything I read says how individual and slow nerve recovery is which is very frustrating, and I feel like I can't plan for anything as I have no idea what i will require or when.
Anyone in the UK have surgery and receive some form of after care? If so what and how did you access it? Did it help?
Also has anyone experience in using a wheelchair with CES? Could it prevent my recovery in any way? Friends/family seem to have the opinion that I shouldn't use it as I may become reliant upon it, however, I'm not able to go anywhere without it as walking outside with a stick is far too dangerous and likely to result in a fall which I could not stand up from and may damage my now fragile spine. I am not physically able to sustain walking for long enough to go into a shop for example as the pain and numbness would cripple me before i had finished shopping. Also does sitting in a wheelchair for periods of time place stress on the CE?
Any advice regarding my next steps (excuse the pun)? I would like to get back to work in some form and they are very supportive but I don't want to delay recovery in any way either.
Thanks for any advice, this board has some great info on it and it's very much appreciated to someone sat in the dark!