Hi my 12 yr old daughter has been a c5 quadraplegic for about 10 months. We were in hosi for 6 months then straight on to intensive physio twice a week for 3 hours.and School once or twice a week. She had no physio this week but had a whole week at school and loved it. She just wants to be at school with her friends. Should i change her physio so she can go to school more often. We Travel 2 hours each way when we go to physio so i want to find something similar near home.
I shouldn't give an opinion on how much physical therapy she needs, since I'm T9 incomplete (and don't know). But I do think that it's just wonderful that going to school makes your daughter happy, and, yes, I hope that she can drink her fill of it. That she has the health to enjoy it is such a blessing, too. If anything goes wrong later on (I hope not, but you know how fragile our health can become), you'll be so glad that you gave her all the fun and accomplishment she could muster. On that long drive to therapy,...I hope you can find something closer. Not as an SCI, but previously, after a slip-and-fall accident, I got stuck driving an hour to and from therapy, and that drive really killed my enthusiasm for physical therapy.
How great that your daughter's happy at school! Happiness is so important, and so are friends and a social life. What are the goals of her physio? As tetra, asks, which exercises, if any, can be accomplished by the family at home? Are there any support groups or activity/sports groups in your area (e.g. swimming) that could also compensate for physio? If might be difficult to give up effective physio, though, and hope for something as good close by. Do the PTs have any suggestions for you?
Although I cannot provide medical advice about the amount of physio she needs, the line that we often hear is 'follow your passion and do what makes you happy'. This case is no exception It is amazing that your daughter has a great support network outside of home. And it is even better that she is utilising that to improve her wellbeing. So the medical side of it is something you would certainly need to consider (and possibly work around) but her happiness is also a big factor in the decision.