Has anyone else had a disc herniation cause "Cauda Equina like" symptoms without actually having compression of the Cauda Equina?
I suspect, after doing a lot of research that my S1 nerve root impinged the piriformis muscle which I in turn affected the pudendal nerves which I believe or lower (S2-S4) but I can't prove it.
sorry for your problems.
You can have your S2-S4 nerves checked by simple bulbocavernosus-reflex-testing. Ask your urologist for the test. If the test fails and your cauda equina is ok, there might be some damage higher up. Google "conus medullaris syndrome". B&b issues are typical for CMS. Sexual problems as well. Legs can be affected. But not necessarily.
Post by phugoi1982 on May 11, 2017 17:07:35 GMT -8
HI rh0bart. It's funny. I read about the bulbocavernosus reflex a long time ago and was amazed neither Urologist tried. Simply got the nerves are never coming back so blame the Neuros who still don't feel I have anything they can figure out. I am going to Mayo Clinic in July and hopefully they will figure out the connection. Their damn spine center rejected my appointment feeling I didn't have a spinal problem despite the urologist writing that on my report but at least Urology is willing to see me to repeat the Urodynamics and maybe do pudendal nerve latency tests despite my MR-neurogrsm of the pudendal nerves being normal.
Post by phugoi1982 on May 11, 2017 17:12:37 GMT -8
Btw, ful brain, cervical thoracic and lumbar MRIs have been done over the years repeatedly. NO Demyelination, Conus Medullarus in normal position and also I had tilt table testing to rule out autonomic neuropathy and that came back normal. And of course no "apparent" compression of the cauda equina or thecal sac over 10 years which I don't believe
And btw, I'm pretty sure my bulbocvernosus reflex is absent because I have lost all "feeling" in the head of the penis. I can touch it and feel it as if it was skin but no arousal at all upon attempted stimulation.
Did you ever have problems related to fibrosis? Can you trigger your problems by bending or extending? Did you ever have functional x-rays to rule out spondylolisthesis e.g.?
Btw. on one occasion I was told that in my case it was impossible to do the bulbocavernosus test because of "technical reasons". Later I had the test in two different ways. Method 1 - using a Foley catheter. Method 2 - stimulation without catheter.
Discussions with doctors can be very frustrating. So be prepared and educate yourself as effectively as possible.
Post by phugoi1982 on May 13, 2017 16:21:12 GMT -8
No fibrosis and no spondylolisthesis on bending x-rays. I do have have lumbarization of at L5 which the doctors say is relatively common and unrelated but I'm not so sure. It is a sacral vertebra that takes the appearance of the lumbar vertebra but has failed to fuse.
I totally agree with you about education. I'm a very well versed patient and pro active but the doctors treat me more like a mental patient and I'm frequently told to take anti anxiety pills. Upon this I explode and tell them if you ass#^#^$ had listened to me when I said I had a neurogenic bladder 15 years ago (which was very very mild) and done something I wouldn't have progressed to where I am now. Why go to medical school when a 21 y/o engineer with no medical training correctly diagnosed himself when everyone else LABELS him a hypochondriac?
Post by bronsonbatad702 on Jun 16, 2017 22:29:56 GMT -8
In the middle of the spinal cord cavity is the cauda equina which holds all the nerves that will be sent out on lower levels including bladder control nerves. A herniated disk can cause enough compression to cause irritation but not full on cauda equina symtoms like incontinence, If experienced frequent urination due to a herniated disk at l5-s1 for a month. I just got a laminectomy and discectomy and my urinary problems are 85% gone. But my nerves were also compressed so they need time to heal. As long as you haven't totally lost control over your bladder and bowls I believe your nerves can still heal. These nerves aren't central nerves so they do have the ability to heal themselves. Don't loose hope. Just tell the neurosurgeon you want the surgery done.
Hi. This is sort of an update on my situation. I am reallu depressed. I went to another Neuro at Mass General (top Neuro hospital in the US) who reviewed my case and again said I have no evidence of spinal cord injury or Cause Equina. I persuaded then to do a special MRI called an MRN which looks at nerves of the sacrum. The results came back normal so it looks like the pudendal nerves which control the bladder and sexual function are normal so I'm back at square one with no follow up.
I reached out to the urologist who diagnosed the neurogenic bladder who still feels I have Cauda Equina syndrome and that the nerve damage is not being visualized properly due to lack of tech to see such small nerves. He says he had many patients with back injuries and no "apparent cord compression" who develop neurogenic bladder. He is pretty fatalistic and says even though it is Cauda Equina you will never be able to prove it. I don't know what else to do.i had being saying I had neurogenic bladder for years due to disc herniation and got sent to multiple psychiatrists being called a hypochondriac and I almost got committed to a mental hospital for arguing with one psychiatrist and saying he was a quack and my symptoms were real. No I know I will neither ever get relief nor will I get justice for what was done to me