Post by phugoi1982 on Mar 15, 2016 11:05:31 GMT -8
Hello. I apologize for the length of this post but I have been suffering through a crippling ordeal that has left me suicidal and without any hope. I am a 33 y/o male. When I was 21 I sustained an L5-S1 disc herniation by jumping from the top of a bunk bed and landing on one foot vs. both. (I did not fall). I had debilitating back pain and sciatica and the doctors refused to even order an MRI because they said I was too young to have a herniated disk. Eventually an MRI showed an mild to moderate L5-S1 disc herniation with moderate spinal stenosis compression of the exiting S1 nerve root and no narrowing of the neural foramina. Around the same time I hurt my back I developed a strange strong urge to urinate all the time that was unbearable. No incontinence, but I went to multiple urologists and neurologists who dismissed me as a hypochondriac and tried to put me on all sorts of drugs. The neurologists said that it was impossible for my back to have caused this symptom. Over the next 12 years I continued to have bladder issues that progressively worsened.
I started to lose sensation in the bladder and eventually had just pain. The thing is everytime my bladder got worse it corresponded to worsening of my back as evidenced by the MRI. But the neurologists were dismissive saying there is no Cauda equina compression so it was impossible for my back to be causing this. In Jan. 2014 my back pain became worse and I developed complete ED and more bladder deficits including weak stream. Went to the ER in Boston and the MRI now showed Neural Forminal Narrowing and impingment of the the thecal sac now affecting both exiting nerve roots. The doctors dismissed me even though I begged them for surgery and was absolutely sure this is what was causing my problems. In May 2014 I had microdiscectomy for the back pain (the doctor cautioned me that it would not relieve the sexual and bladder problems because he did not see any evidence of that on the MRI) and since then I've still had the same problems.
Finally, I begged a Urolgist post surgery to do a comprehensive Urodynamics test and that showed a Neurogenic bladder. I was basically urinating using abdominal muscles and not the bladder. I was livid because I had begged the doctors for years to do this test and they ignored me telling me bladder issues and now sexual issues were psychological. I went back to the Neuro armed with this information and he dismissed the urologist saying "Yes, you have a neurogenic bladder but there is no way your back could have caused it." They then did multiple MRI's of brain/thoracic/cervical spine looking for MS and other demyelinating diseases but all normal. Also, I had a completely normal neuro exam, and normal muscle strength, so even the doctor was skeptical about me having MS for 10 years (the beginning of bladder troubles) and not having more symptoms.
I apologize for the long post but I am livid because the doctors have crippled me and now I can't even sue them because I cannot conclusively prove that my neurogenic bladder was due to the l5-s1 herniation even though it's obvious from the timing. Has anyone else had a disc herniation cause "Cauda Equina like" symptoms without actually having compression of the Cauda Equina?
I suspect, after doing a lot of research that my S1 nerve root impinged the piriformis muscle which I in turn affected the pudendal nerves which I believe or lower (S2-S4) but I can't prove it. The doctors gave up on me and now basically want me to hunt for some phantom autonomic neuropathy specialist because they think in addition to the back issues, maybe some mysterious autoimmune neuropathy hit me although I believe this is complete garbage. The strongest link I have is that every exacerbation of back pain and progression of disc herniation caused as evidenced by an MRI correlated with a worsening of the sexual/bladder problems. Thanks again for the input and sorry for rambling so much.