Post by Lαrα on Sept 10, 2014 11:25:15 GMT -8
The best we can do when we have conditions, injury or pain that we have to live with every day id learn to manage it. We have to become informed and be our own expert. I know little about Neuropathy except that i know nerve pain and thats bad enough.
From my very basic understanding, Peripheral Neuropathy can affect so many parts of the body and having persistent pain must be a strain.
The Neropathy Society has some great information and advice....I will keep sharing as much as possible. I know how i felt when i found i had Cauda Equina Syndrome and i just couldnt find enough information. I feel the same about neuropathy...Its actually difficult to fine info on....
This thread is about how to manage your own condition and the Neuropathy Association offers this excellent advice:
Join The Neuropathy Association at 1-880-247-6968, www.neuropathy.org. You can get information on neurologists and support groups in your area.
Read The Neuropathy Association’s booklets Explaining Peripheral Neuropathy, and Exercising with Neuropathy.
Read Numb Toes and Aching Soles and Numb Toes and Other Woes both by John Senneff and available from the Association or your public library.
Do Your Homework as a Patient
Prepare your medical history, recording all illnesses, accidents and surgeries since childhood. Make a list of current medications and dosages to share with physician.
Bring along prior EMGs (Electromyogram), NCVs (Nerve Conduction Velocity), skin or nerve biopsies, blood tests, and any other tests from a previous neurologist.
Write down the important questions you want to ask the doctor. Bring along a family member or friend to listen to the doctor, and to record answers to your questions. They can also help you make sure you covered everything on that list.
Always get copies of previous evaluations or summaries, and tests you have taken so you will have a complete medical history if you change doctors.
When medications are prescribed, check on the Internet for drug interactions and drug side effects by again using a search engine like www.google.com/ to look up your
medications. Also consult with your pharmacist and read through any inserts provided with your medications.
If you are not satisfied, you can get another opinion from a different neurologist.
Ask your physician or the Association about clinical trials where new medications are tested.
Join, or start a support group where you can exchange information with others.
Remember, you are not alone in this! There are plenty of resources out there to help you, and they will ultimately better serve you if you help yourself!