We all experience different pain, and nerve pain feels different to each individual. Let's not start jumping down each other's throats just because somebody else's pain is different. There is a reason this forum is the only one I come on anymore, and that is the fact that we don't turn every thread into an argument or debate. I posted this thread to share with you guys about radiculopathy, as it is my new diagnosis, not to bicker about whose pain is worse, etc. Let's stay different than the other forums so I still talk to you guys.
Your absolutely right Knight...no one wants this kind of negative energy on threads. This is a support forum. Healthy discussion is fine in certain parts of the forum but this post isnt where it needs to be or belongs.
It is so hard to describe types of pain, nerve or otherwise! I found it helpful, Knight, that you articulated the "electrical shock" type of pain, which does move or radiate. And Lαrα articulated the radiating pain that gives this diagnosis its designation. I guess my nerve pain below L3 is of both kinds, some the searing, burning kind and some the acute electrical shocks. Totally agree with sentiment that we need to be kind to each other in sharing, not creating dissent although respectful disagreement can be useful. That is what makes this forum a good place to come.
After this last surgery, I was on Valium (Diazepam) for my spasms, and it decreased my radiculopathy & neuropathy to almost nothing. I was in heaven! Then, after a couple months, they took my sweet, sweet relief away. I went back on Baclofen, and my spasticity & nerve pain came back with a vengeance! I'm taking 20-30mg of Baclofen per day, up from 10mg, and the spasms are almost gone, but my nerve pain is unbearable! I get shooting, shocking, burning, needle-poking, tingling, stabbing, and/or icy feelings constantly, and it feels like my big toes are going to explode. The majority of the left side of my body below the T10 level is still completely numb & pretty much useless.
My primary doctor is so tough to get in to talk to through the phone, much less to see in person, so I'm struggling to get a referral to the Pain Clinic that is an hour away. I can hardly sleep, and when I finally do, I wake up exhausted and sometimes in tears. I feel like I'm losing my mind!
I've exhausted all of the medication options for nerve pain that my doctors and I can think of; nothing works. Keppra (Levitiracetem) worked well for the first year, but it gave me kidney stones. (ouch!) I then tried Neurontin (Gabapentin), which caused heart spasms & chest pain. I tried Alpha-Lipoic Acid next, and it doubled my nerve pain. Then, Lyrica, which gave me hives and sores on my scalp. Opiates don't do anything and neither do Ativan (lorazepam) or Zoloft (sertraline). (Zoloft helps my depression anxiety though.)
I've heard of people getting their spinal cord severed the rest of the way because their nerve pain was so bad, but I can't/won't do that. I like my function. I'm not going to lie, I have thought about it though. I'm lost here... My nerve pain alone is at a 7 or 8 every second. I get no relief, and hardly sleep anymore. I guess I'm just getting this off my chest because I'm frustrated and so upset. Nobody will help me! *cries*
Knight..this is a pisser, i dont know anything else to say about it Rant away lovely, we all need to sometimes and if you cant do it here where can you do it?!
I wish your docs could sort something better for you...There seems to be a reluctance to administer diazepam longterm because they are addictive. I prob shouldnt say but i would rather be addicted to a painkiller than in pain, especially if there is no alternative that works
Something must not be right if you're still having pain despite the amount of meds you're taking. Try doing some physio, maybe your body needs activity/exercise?
I'm not sure. When I move around, the pain either gets worse or stays the same. Today, it's exceptionally bad since it's raining. I still have to get out and do things, though I really don't want to get all muddy.
Knight, this is an awful situation you have. Yes, you really need to get to pain clinic. Some people have had good relief with low doses of methadone. I cannot fathom why there is concern about "addiction" when severe pain produces worse physical and psychological problems. You cannot go on with this level of pain, must find some relief. While alternatives are sought, plead with your doctor for Diazepam to get relief.
If anyone is from the Boston area, the Translational Pain Research Program at Brigham and Women's Hospital is seeking individuals who have lumbar radiculopathy, a type of pain associated with herniated discs (sometimes called "sciatica"), to participate in a research study.
Volunteers who qualify for the study will be reimbursed for their time and travels to and from BWH.
For more information please call 617-525-7246 (PAIN) or email PainTrials@partners.org
• Be male or female between the ages of 18 and 70 • Be in generally good health, with no with clinically significant renal, hepatic, or cardiac disease, or with a clinical history of life-threatening arrhythmias • Have pain associated with lumbar radiculopathy observed for at least 3 months • Have not undergone corrective surgery for lumbar radiculopathy